Disclaimer
The material included here is a composite of information taken from the history of FAPG and INTERNAF Emails covering medical articles, physician recommendations, and personal experience. This information SHOULD NOT be used as a substitute for seeking professional medical diagnosis, treatment, and care. You SHOULD NOT rely on any information in these pages to replace consultations with qualified health professionals.
Overview
FA brings with it a host of life situations that involve reaching out to medical resources of many kinds and for many needs and conditions. In these pages you will find Western medicine treatment suggestions plus inputs from many other countries, cultures, medical traditions and alternative medical approaches. The authors bring these inputs to you with a minimum of scrutiny or censorship. DO use this information to broaden your scope of possible symptomatic FA treatments.
FARA Clinical Guidelines
Friedreich's Ataxia Research Alliance has gone to considerable lengths to pull together a set of "best practices" for FA medical conditions representing the perspectives of 39 known and respected Western medicine FA clinicians. The authors recommend you start there to get a firm footing on the "typical" approach to FA clinical care that has been strongly vetted before advancing to these minimally vetted supplemental grass-roots suggestions on clinical care.
FARA Clinical Care Guidelines
Organization
We have tried to organize the Medical section for reasonably easy location of topics but there are many topics and several ways many could be inserted. Do know most of what you seek will be here. One suggestion is to use the website Search feature found toward the bottom of the main left menu bar. Feel free to use the "Contact Us" icon on the bottom of every page for questions. Note that this content is evolving and many topics are currently under development.
Emergencies: Hospital and ER
Dentistry
Diagnosis/Special Populations/Siblings-Relatives
Doctors
Ataxia and FA Training
Doctor Visits: How often for what?
Emotional/Mental
FA and Death
FA Organ Donation
FA Death: When and How
Physical Symptoms
Bladder
Bowel
Choking/Dysphagia
Dehydration
Diabetes
Digestion/Reflux
Ears/Hearing
Energy/Fatigue
FA Heart/Striations
Iron Levels
Legs/Feet
Lung Capacity
Pain
Pressure Sores
Reflux
Scoliosis Bracing
Sex Drive
Skin Sensitivity
Sleep
Spasticity and Spasms
Speech
Spinal Surgery
Temperature Sensitivity
Tremors
Vision
Physical Therapy
Pregnancy
Puberty
Routine Periodic Testing
Supplements
